The study was approved by the Norwegian Agency for Shared Services in Education and Research (reference no. 189580) and the processing of personal data in this project is lawful and complies with Norwegian and European data protection legislation.
Formal consent was obtained in written form from all participants. We informed all those who become involved in the session in written, orally, and by engaging as a collective in arts-based practices. It was possible for everyone in the group to withdraw from the project without any consequences. What it means to give or receive informed consent is not always obvious when we create art and research together with people living with dementia. Informed consent means that a person knows what he or she is giving consent to. This can be challenging when we work artistically, with an unknown outcome and when we cannot rely on memory and the relational mind. Relational consent is crucial in aesthetic spaces in which we are part of the same situation. Often, it becomes obvious if a person is enjoying a moment and agrees on being part of a larger art and research project. Consent by editing will be used when we visit the exhibition, look together at the webpage and organise a public film viewing. We will continuously assess the appropriateness of our exhibits or text. |